Thursday, September 6, 2012

Gotta Get This Under Control: The ongoing saga of My Whacky Thyroid

A few weeks ago I wrote about some challenges I've dealt with over the past 8 months or so. During that difficult time I lost over 50 pounds. Of course there is the fact that I had just had a baby and I did have some pregnancy weight to lose but that was only about 25 - 30 pounds. After giving birth I was hardly exercising and I was eating like a pig and somehow the pounds were just melting off. This sounds like a dream come true, right?

Everywhere I went people were telling me I looked great and complimenting me on losing the baby weight so quickly. The compliments felt good and I was happy to be losing weight but at the same time I knew that something must be wrong. People would ask me to share my weight loss secret I would just shrug my shoulders and say, "I guess it's just the stress of having two kids, I dunno." I knew that wasn't it though. On the inside I was feeling anxious about what must be wrong with me. I started to imagine all kinds of horrible scenarios. I felt shaky and dizzy a lot of the time. I had frequent headaches, hot sweats, and a racing heartbeat. I felt tired, more tired than I had when I was pregnant. Because I was feeling anxious and depressed at the time I thought my physical symptoms could be related. I really didn't know what was going on but I was definitely nervous about it.

In April I decided to see a doctor and I requested blood tests. I'm so glad I did. My doctor called me back almost immediately and told me that my blood tests showed high levels of thyroid hormone. She asked me to come in for more blood tests and told me that if the second round confirmed the first results then she was going to refer me to an endocrinologist.

Sure enough the second round of blood tests came back confirming that I was hyperthyroid.
After waiting several weeks for an appointment, I finally got in to see the endocrinologist. Much to my disappointment, he really had no answers for me. He simply ordered more blood work. I was deflated. I wanted answers now. I wanted to start feeling better. I'd been feeling physically awful for months at this point.

Finally, after three rounds of blood tests I was diagnosed with Graves' Disease. Graves' Disease is an autoimmune disorder that causes the thyroid gland to produce too much thyroid hormone resulting in hyperthyroidism. Of course I immediately went home and "googled" Graves' Disease and found that many of the symptoms, including fatigue, frequent sweating, increased appetite, weight loss, nervousness, and anxiety, matched my symptoms exactly.

The diagnosis brought on mixed emotions for me. In many ways I felt relieved. I finally had answers to why I'd been feeling so crappy and why I'd lost so much weight so fast. On the other hand, any diagnosis of something that you will probably have to deal with for the rest of your life is a bit depressing. I sat with it for a few days, decided to go with the positive, and move on.

The endocrinologist prescribed a medicine that I had to take twice a day and he told me he wanted to see me again in three months to check my thyroid levels again. Today was my three month check up. Some good news: I've been taking my medicine as directed and for the most part my nasty symptoms have decreased. More good news: I'm not hyperthyroid anymore. Some sort-of-bad news: Now I'm HYPOthyroid. This was not shocking to me. I'd been suspecting it because over the past three months I've gained almost 20 pounds. This weight gain has been incredibly discouraging for me because I've been making every effort to avoid the inevitable. I've been working out 4-6 days a week and I've been watching my diet. Despite my efforts, I've noticed that my clothes are a bit snug and the numbers on the scale have been increasing. A symptom of hypothyroidism is weight gain so it made sense to me today when my doctor told me that my medication dose had been a bit too high and had lowered my thyroid activity into the hypothyroid category. So that's good news I guess. At least I have an excuse for packing on the pounds!

My doctor is changing my medicine dose and wants to see me again in another three months. I'm feeling hopeful that the new dose will help my weight issues as well as continue to control my symptoms. I'm feeling good about the fact that my doctor had a positive attitude today when I saw him. I'm trying not to feel discouraged that it may take a few tries to get my medicine just right.

The thyroid is a pretty remarkable gland that most people probably take for granted every day. It's responsible for controlling how are body uses energy and how it makes proteins. That's a lot of work for one little gland! I don't take my thyroid for granted any more. I wish mine worked the way it's supposed to but it doesn't. It's whacky and it's made me feel pretty whackadoo! Yeah that word pretty much sums it up. I feel like I'm still riding this up and down roller coaster of thyroid mania! Hopefully it will be under control soon.

If you'd like more information about Graves' Disease or hyperthyroidism, I found the Mayo Clinic website to be helpful:
Mayo Clinic - Graves' Disease
Mayo Clinic - hyperthyroidism

Obviously I am not a doctor and I am not in any way an expert on these topics. I will say though, that if you are also feeling "whackadoo", you may want to ask your doctor for some blood tests. For me, it helped rule out some more serious concerns as well as get some answers and, most importantly, some piece of mind.

2 comments:

  1. Glad you got that "mystery" solved. I just read an article in a recent Martha Stewart magazine about hypothyroid disease. I pretty much diagnosed myself on the spot with it. I have all the symptoms, but not sure I'm ready to go have the blood work for it. Guess I'm not quite ready to hear the answer. I am nervous about how it said when you start on meds you never come off since it makes your thyroid stop making the hormones completely. It sucks to feel "wacko-co"...good luck on your battle back to "normal-ness".

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  2. It doesn't sound like much fun at all! Hope you sail through to your next check up. They like to check my thyroid every year or so, hoping that it is the cause of weight gain and lethargy but no, it never is =) so I got the trendy diagnosis of Fibromyalgia (if there are commercials for the condition on tv every 20 minutes, it is trendy to me) good times =)

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